TY - JOUR
T1 - Attention-deficit/hyperactivity disorder: parent/carer perceptions of barriers to healthcare access
AU - Rezel-Potts, Emma
AU - Kordowicz, Maria
AU - Downs, Johnny
AU - White, Patrick
AU - Prasad, Vibhore
N1 - Funding Information:
Funding This study was supported by a Starter Grant for Clinical Lecturers from the Academy of Medical Sciences. ER-P received salary funding from the Starter Grant for Clinical Lecturers from the Academy of Medical Sciences, which was awarded to VP. VP is a National Institute for Health Research (NIHR) academic clinical lecturer.
Publisher Copyright:
© Author(s) (or their employer(s)) 2021.
PY - 2021/11/1
Y1 - 2021/11/1
N2 - Background: Children and young people (CYP) with attention-deficit/hyperactivity disorder (ADHD) face delays in diagnosis and barriers to accessing appropriate interventions. Evidence is limited on how these barriers are perceived by their parents and carers. Methods: Focus group in South London with parents/carers of CYP with ADHD. Data were thematically analysed using an inductive/deductive hybrid approach. Results: Participants (n=8) described the challenge of accessing services within a disjointed, multiagency system for their CYP's ADHD and broader health needs. They described feeling judged and overlooked by healthcare professionals, which could negatively impact the health, relationships and educational progress of their children. Pragmatic solutions were proposed, including providing parents with information on navigating services at an early stage of ADHD symptom recognition. Conclusions: Parents/carers sought improved continuity of care within and between services. They are a key group for consultation on the development of interventions to improve access for CYP with ADHD.
AB - Background: Children and young people (CYP) with attention-deficit/hyperactivity disorder (ADHD) face delays in diagnosis and barriers to accessing appropriate interventions. Evidence is limited on how these barriers are perceived by their parents and carers. Methods: Focus group in South London with parents/carers of CYP with ADHD. Data were thematically analysed using an inductive/deductive hybrid approach. Results: Participants (n=8) described the challenge of accessing services within a disjointed, multiagency system for their CYP's ADHD and broader health needs. They described feeling judged and overlooked by healthcare professionals, which could negatively impact the health, relationships and educational progress of their children. Pragmatic solutions were proposed, including providing parents with information on navigating services at an early stage of ADHD symptom recognition. Conclusions: Parents/carers sought improved continuity of care within and between services. They are a key group for consultation on the development of interventions to improve access for CYP with ADHD.
UR - http://www.scopus.com/inward/record.url?scp=85103189035&partnerID=8YFLogxK
U2 - 10.1136/archdischild-2020-321362
DO - 10.1136/archdischild-2020-321362
M3 - Article
SN - 0003-9888
VL - 106
SP - 1125
EP - 1128
JO - Archives of Disease in Childhood
JF - Archives of Disease in Childhood
IS - 11
M1 - 321362
ER -