TY - JOUR
T1 - Bringing an end to diabetes stigma and discrimination: an international consensus statement on evidence and recommendations
AU - Sturt, Jackie
N1 - Funding Information:
We thank Bernard Yeboah-Asiamah Asare (Deakin University, Geelong, VIC, Australia) for providing independent coordination of the Delphi surveys, enabling panel members’ responses to remain confidential; he designed, formatted, and distributed the online survey under the supervision of EH-T and JSp; analysed the results, providing deidentified results for reporting purposes; and communicating in confidence with panel members (eg, providing their individual ratings for review in subsequent surveys). We thank Robert Brines (Bite Medical Consulting, Cambridge, UK; supported by The diaTribe Foundation) for his administrative assistance collating the draft sections of the methods and evidence summary, authored by the expert panel, into a single document, formatting, and compiling references. We thank Victoria Yutronich (Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Melbourne, VIC, Australia) for developing the community-based EndDiabetesStigma.org website, enabling individuals and organisations across the world to view and take the pledge online. We acknowledge and thank all the individuals and organisations that have taken the pledge to end diabetes stigma. We acknowledge and thank all those who have enabled translations into languages other than English, which are available via the EndDiabetesStigma.org/pledge-translations/. Editorial note: The Lancet Group takes a neutral position with respect to territorial claims in published maps and institutional affiliations.
Publisher Copyright:
© 2024 Elsevier Ltd
PY - 2024/12/19
Y1 - 2024/12/19
N2 - People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.
AB - People with diabetes often encounter stigma (ie, negative social judgments, stereotypes, prejudice), which can adversely affect emotional, mental, and physical health; self-care, access to optimal health care; and social and professional opportunities. To accelerate an end to diabetes stigma and discrimination, an international multidisciplinary expert panel (n=51 members, from 18 countries) conducted rapid reviews and participated in a three-round Delphi survey process. We achieved consensus on 25 statements of evidence and 24 statements of recommendations. The consensus is that diabetes stigma is driven primarily by blame, perceptions of burden or sickness, invisibility, and fear or disgust. On average, four in five adults with diabetes experience diabetes stigma and one in five experience discrimination (ie, unfair and prejudicial treatment) due to diabetes, such as in health care, education, and employment. Diabetes stigma and discrimination are harmful, unacceptable, unethical, and counterproductive. Collective leadership is needed to proactively challenge, and bring an end to, diabetes stigma and discrimination. Consequently, we achieved unanimous consensus on a pledge to end diabetes stigma and discrimination.
UR - http://www.scopus.com/inward/record.url?scp=85180567962&partnerID=8YFLogxK
U2 - 10.1016/S2213-8587(23)00347-9
DO - 10.1016/S2213-8587(23)00347-9
M3 - Article
SN - 2213-8587
VL - 12
SP - 61
EP - 82
JO - The Lancet Diabetes and Endocrinology
JF - The Lancet Diabetes and Endocrinology
IS - 1
ER -
