Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care

Simone Raenker; Rebecca Hibbs; Elizabeth Goddard; Ulrike Naumann; Jon Arcelus; Agnes Ayton; Bryony Bamford; Nicky Boughton; Frances Connan; Ken Goss; Bert Lazlo; John Morgan; Kim Moore; David Robertson; Christa Schreiber-Kounine; Sonu Sharma; Linette Whitehead; Jennifer Beecham; Ulrike Schmidt; Janet Treasure

doi:10.1002/eat.22068

Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care

Simone Raenker, Rebecca Hibbs, Elizabeth Goddard, Ulrike Naumann, Jon Arcelus, Agnes Ayton, Bryony Bamford, Nicky Boughton, Frances Connan, Ken Goss, Bert Lazlo, John Morgan, Kim Moore, David Robertson, Christa Schreiber-Kounine, Sonu Sharma, Linette Whitehead, Jennifer Beecham, Ulrike Schmidt, Janet Treasure^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

65 Citations (Scopus)

Abstract

Objective:
The aim of the study was to examine how carers cope practically and emotionally with caring for individuals with anorexia nervosa who require intensive hospital care.

Method:
This study explores objective burden (time spent with caregiving and number of tasks), subjective burden (psychological distress), and social support in a sample of parents (n = 224) and partners (n = 28) from a consecutive series of patients (n = 178) admitted to inpatient units within the United Kingdom.

Results:
Most time was spent providing emotional support and less with practical tasks. Time spent with caregiving was associated with carer distress and was fully mediated by carer burden. This was ameliorated by social support. Partners received minimal support from others, and we found similar levels of burden and distress for mothers and partners.

Discussion:
The data indicate that professional and social support alleviates carer distress and may be of particular value for partners who are more isolated than parents. The data also suggest that time spent with practical support may be of more value than emotional support.

Original language	English
Article number	N/A
Pages (from-to)	346-354
Number of pages	9
Journal	International Journal of Eating Disorders
Volume	46
Issue number	4
Early online date	25 Oct 2012
DOIs	https://doi.org/10.1002/eat.22068
Publication status	Published - May 2013

Keywords

DISTRESS
INTERPERSONAL MAINTENANCE MODEL
HEALTH
SOCIAL SUPPORT
caregiving burden
eating disorders
anorexia nervosa
ADOLESCENTS
inpatient
BURDEN
BULIMIA-NERVOSA
social support
SCHIZOPHRENIA
carers
EATING-DISORDERS
MENTAL-ILLNESS
Acknowledged-BRC
Acknowledged-BRC-13/14

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1002/eat.22068

Cite this

Raenker, S., Hibbs, R., Goddard, E., Naumann, U., Arcelus, J., Ayton, A., Bamford, B., Boughton, N., Connan, F., Goss, K., Lazlo, B., Morgan, J., Moore, K., Robertson, D., Schreiber-Kounine, C., Sharma, S., Whitehead, L., Beecham, J., Schmidt, U., & Treasure, J. (2013). Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care. International Journal of Eating Disorders, 46(4), 346-354. Article N/A. https://doi.org/10.1002/eat.22068

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title = "Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care",

abstract = "Objective:The aim of the study was to examine how carers cope practically and emotionally with caring for individuals with anorexia nervosa who require intensive hospital care.Method:This study explores objective burden (time spent with caregiving and number of tasks), subjective burden (psychological distress), and social support in a sample of parents (n = 224) and partners (n = 28) from a consecutive series of patients (n = 178) admitted to inpatient units within the United Kingdom.Results:Most time was spent providing emotional support and less with practical tasks. Time spent with caregiving was associated with carer distress and was fully mediated by carer burden. This was ameliorated by social support. Partners received minimal support from others, and we found similar levels of burden and distress for mothers and partners.Discussion:The data indicate that professional and social support alleviates carer distress and may be of particular value for partners who are more isolated than parents. The data also suggest that time spent with practical support may be of more value than emotional support.",

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author = "Simone Raenker and Rebecca Hibbs and Elizabeth Goddard and Ulrike Naumann and Jon Arcelus and Agnes Ayton and Bryony Bamford and Nicky Boughton and Frances Connan and Ken Goss and Bert Lazlo and John Morgan and Kim Moore and David Robertson and Christa Schreiber-Kounine and Sonu Sharma and Linette Whitehead and Jennifer Beecham and Ulrike Schmidt and Janet Treasure",

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doi = "10.1002/eat.22068",

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Raenker, S , Hibbs, R , Goddard, E, Naumann, U, Arcelus, J, Ayton, A, Bamford, B, Boughton, N, Connan, F, Goss, K, Lazlo, B, Morgan, J, Moore, K, Robertson, D, Schreiber-Kounine, C, Sharma, S, Whitehead, L, Beecham, J, Schmidt, U & Treasure, J 2013, 'Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care', International Journal of Eating Disorders, vol. 46, no. 4, N/A, pp. 346-354. https://doi.org/10.1002/eat.22068

TY - JOUR

T1 - Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care

AU - Raenker, Simone

AU - Hibbs, Rebecca

AU - Goddard, Elizabeth

AU - Naumann, Ulrike

AU - Arcelus, Jon

AU - Ayton, Agnes

AU - Bamford, Bryony

AU - Boughton, Nicky

AU - Connan, Frances

AU - Goss, Ken

AU - Lazlo, Bert

AU - Morgan, John

AU - Moore, Kim

AU - Robertson, David

AU - Schreiber-Kounine, Christa

AU - Sharma, Sonu

AU - Whitehead, Linette

AU - Beecham, Jennifer

AU - Schmidt, Ulrike

AU - Treasure, Janet

PY - 2013/5

Y1 - 2013/5

N2 - Objective:The aim of the study was to examine how carers cope practically and emotionally with caring for individuals with anorexia nervosa who require intensive hospital care.Method:This study explores objective burden (time spent with caregiving and number of tasks), subjective burden (psychological distress), and social support in a sample of parents (n = 224) and partners (n = 28) from a consecutive series of patients (n = 178) admitted to inpatient units within the United Kingdom.Results:Most time was spent providing emotional support and less with practical tasks. Time spent with caregiving was associated with carer distress and was fully mediated by carer burden. This was ameliorated by social support. Partners received minimal support from others, and we found similar levels of burden and distress for mothers and partners.Discussion:The data indicate that professional and social support alleviates carer distress and may be of particular value for partners who are more isolated than parents. The data also suggest that time spent with practical support may be of more value than emotional support.

AB - Objective:The aim of the study was to examine how carers cope practically and emotionally with caring for individuals with anorexia nervosa who require intensive hospital care.Method:This study explores objective burden (time spent with caregiving and number of tasks), subjective burden (psychological distress), and social support in a sample of parents (n = 224) and partners (n = 28) from a consecutive series of patients (n = 178) admitted to inpatient units within the United Kingdom.Results:Most time was spent providing emotional support and less with practical tasks. Time spent with caregiving was associated with carer distress and was fully mediated by carer burden. This was ameliorated by social support. Partners received minimal support from others, and we found similar levels of burden and distress for mothers and partners.Discussion:The data indicate that professional and social support alleviates carer distress and may be of particular value for partners who are more isolated than parents. The data also suggest that time spent with practical support may be of more value than emotional support.

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KW - SOCIAL SUPPORT

KW - caregiving burden

KW - eating disorders

KW - anorexia nervosa

KW - ADOLESCENTS

KW - inpatient

KW - BURDEN

KW - BULIMIA-NERVOSA

KW - social support

KW - SCHIZOPHRENIA

KW - carers

KW - EATING-DISORDERS

KW - MENTAL-ILLNESS

KW - Acknowledged-BRC

KW - Acknowledged-BRC-13/14

U2 - 10.1002/eat.22068

DO - 10.1002/eat.22068

M3 - Article

C2 - 23108538

SN - 0276-3478

VL - 46

SP - 346

EP - 354

JO - International Journal of Eating Disorders

JF - International Journal of Eating Disorders

IS - 4

M1 - N/A

ER -

Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care

Abstract

Keywords

UN SDGs

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Cite this