'Journeys' in the life-writing of adult-child dementia caregivers

Research output: Contribution to journalArticlepeer-review

10 Citations (Scopus)

Abstract

This article explores how Alzheimer's disease caregivers struggle under the impact of a parent's memory loss on their own personality. In particular, it analyses how caregivers perceive and, thus, present their experiences of the ever intensifying caregiving activity in terms of a 'journey'. In doing so, this work takes into account both the patient's continuing bodily as well as cognitive decline and its intricately linked influence on the caregiver's physical and emotional stability. Equally, this study investigates how caregivers portray memory loss, and how their portrayal fits into our conceptualisation of illness narratives and the culture of autobiographical writing.

Original languageEnglish
Pages (from-to)385-97
Number of pages13
JournalJournal of Medical Humanities
Volume34
Issue number3
DOIs
Publication statusPublished - Sept 2013

Keywords

  • Adaptation, Psychological
  • Adult
  • Adult Children
  • Aged
  • Aged, 80 and over
  • Alzheimer Disease
  • Aspirations (Psychology)
  • Autobiography as Topic
  • Caregivers
  • Cost of Illness
  • Emotions
  • Family Relations
  • Female
  • Humans
  • Individuation
  • Male
  • Narration
  • Personality
  • Self Concept
  • Sick Role
  • Social Behavior Disorders
  • Journal Article
  • Research Support, Non-U.S. Gov't

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